Singh Gaucher S/O Shri Sitaram ... vs State Of Rajasthan on 16 December, 2020
HIGH COURT OF JUDICATURE FOR RAJASTHAN
BENCH AT JAIPUR ... Civil Writ Petition No. 14630/2020
Ram Singh Gaucher S/o Shri Sitaram Gaucher & Ors.
----Petitioner
Versus
State Of Rajasthan & Ors.
----Respondents
place towards ensuring proper treatment to 28 identified
patients/children suffering from Gaucher.
The affidavit filed by the State shows that though some
financial support ... expenses as the cost of treatment of the
particular rare disease "Gaucher" is very high which mainly
involves import of drugs from abroad
ensuring treatment of children identified to be
suffering from rare disease 'Gaucher'. As the petition seeks to
ventilate a grievance that proper treatment ... very comprehensive policy to treat various
rare diseases including 'Gaucher' which is the disease from which
the children in the present case
infrastructure, medicine in the
matter of treatment of certain rare diseases particularly Gaucher
as number of persons were found to be suffering from disease.
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State showing the
progress and development towards facility treatment for the
Gaucher disease referred in the present case.
Learned counsel for the petitioner would submit ... treatment to those who are suffering from the disease of
Gaucher and the details thereof including nature of medicines
used for treatment shall be stated
getting
treatment of his son who is suffering from rare
disease Gaucher;
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2019
1. The petitioner is suffering from rare disease of Gaucher
and has prayed for providing financial assistance for his treatment.
2. Learned Counsel relies
provide
necessary medical facility to the persons who are suffering from
disease Gaucher.
This Court deems it proper to permit the counsel for the
petitioner
Learned counsel for the respondents submits that no children
suffering from the Gaucher disease has come for treatment in the
government hospital in the COVID ... also submits that two such children have already been died of the
Gaucher disease.
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fact
that out of 17 children identified suffering from Lysosomal Storage
Disorder (Gaucher) in the State of Rajasthan, in the list provided
as Exhibit
