economically weaker
section of the society suffering from a chronic and rare disease, gaucher, is
entitled to free medical treatment costing about rupees six lakhs ... treatment is that gaucher
falls in the category of rare diseases. As small number of people suffer from
rare diseases, pharmaceutical companies are unable
namely "Saurya Singh" is suffering from rare
disease MPS II (Hunter Syndrome), which is caused due to lack
of iduronate Salfatase enzyme ... petitioner's son is suffering from the aforesaid rare disease. The
said report was also subsequently confirmed by All India
Institute of Medical Sciences
also effected with
"Zullian Berry Syndrome", a rare disease and has been taking
treatment in Sunshine Hospital, Secunderabad and using
medicines continuously
petitioner is a handicapped person
and suffering from rare diseased which requires for a regular
checkup.
2) He would further submit that the petitioner
Type-I
6-WP-4560-21 3/6
which was a rare disease, he was otherwise medically fit which
was certified by the AIIMS ... petitioner subsequently did not comprise of any
doctor specialized in the rare disease with which the petitioner
was affected. The learned counsel placed reliance
period of three months on the ground of ailment of a rare disease
VHL i.e. Von Hippel Lindau, this Court has sought report from
been stated that the appellant is suffering with a rare
disease of VHL i.e. Von Hippel Lindau. This disease is a
hereditary condition associated ... period of three
months for proper treatment of this rare disease.
Per contra, learned Public Prosecutor for the State was also
heard.
Considered.
Report
Treatment Abroad :
The treatment of a disease in a country abroad would be permitted in extremely rare cases where satisfactory treatment is not available
required for pin-pointing clinical stage following disease course and/or guidance for treatment of the disease were not carried out for obvious reasons ... manifestations. In this disease SLE, as many 25% of patients may experience remissions, sometimes for a few years, but these are rarely permanent. Though
Except in rare cases
of specific injury and disease, the CP (Colour Perception) of a person
does not alter during life time. Colour blindness
